Executive Board

The members of the executive board are:

• Dr. Symone Detmar, Netherlands Organisation for Applied Scientific Research (TNO, Leiden, The Netherlands)
• Dr. Cor Oosterwijk, former secretary general European Genetic Alliances’ Network (EGAN, Brussels, Belgium) & former director Patient Alliance for Rare and Genetic Diseases (VSOP, Utrecht, the Netherlands)
• Dr. Matty Crone, University of Leiden Medical Centre (LUMC, Leiden, the Netherlands)
• Prof. dr. Hugo Heymans, University of Amsterdam Medical Centre (AUMC, Amsterdam, the Netherlands)
• Jan Lucas Ket, Rotarian Action Group for healthy Pregnancies, Healthy Children
• Dr. Martina Ens, Zonta, the Netherlands